- Genetic Interest Group
Information about this umbrella group of organizations working together to improve services for people with genetic disorders. A notice board, education, services and links are provided.
http://www.gig.org.uk/
(Added: Sat Sep 06 2003 Hits: 1 Rating: 0.00 Votes: 0)
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- PiXiE
Organisation supports sufferers of Pseudoxanthoma Elasticum (PXE). Includes information about the condition and its causes, guidance on managing it, and contact details.
http://www.pxe.org.uk/
(Added: Sat Sep 06 2003 Hits: 4 Rating: 0.00 Votes: 0)
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- The Alkaptonuria Society
Information about this genetic metabolic disorder for patients and professionals. Includes an FAQ, and a registration page for sufferers.
http://www.alkaptonuria.info/
(Added: Sat Sep 06 2003 Hits: 3 Rating: 0.00 Votes: 0)
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- The Williams Syndrome Foundation
Information for parents, carers, and professionals about a non-hereditary syndrome which can cause brain damage in varying degrees, combined with some physical side-effects.
http://www.williams-syndrome.org.uk/
(Added: Sat Sep 06 2003 Hits: 2 Rating: 0.00 Votes: 0)
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